Privacy Policy

FSHD UK Charity Privacy Policy

Last Updated: June 2026

FSHD UK Charity is committed to protecting and respecting your privacy. This Privacy Policy explains how we collect, use, store, and protect your personal information when you visit our website, contact us, make a donation, participate in our activities, or otherwise engage with our charity.

FSHD UK Charity acts as a Data Controller for the purposes of the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018.

Contact Details

If you have any questions about this Privacy Policy or how we use your personal information, please contact:

FSHD UK Charity
Email: Tek@fshduk.com

Information We Collect

We may collect and process the following personal information:

Information You Provide to Us

• Name

• Email address

• Telephone number

• Postal address

• Donation information

• Event registration details

• Volunteer application information

• Information submitted through contact forms

• Any correspondence you send to us

Information Collected Automatically

When you visit our website, we may automatically collect:

• IP address

• Browser type and version

• Operating system

• Website usage information

• Pages viewed and time spent on our website

• Referral source information

This information is collected using cookies and similar technologies.

How We Use Your Information

We use your information to:

• Respond to enquiries and requests

• Provide information about our services, campaigns, and activities

• Process donations and fundraising activities

• Administer events and volunteer programmes

• Improve our website and services

• Comply with legal and regulatory obligations

• Maintain financial and administrative records

• Send newsletters and updates where you have consented to receive them

Lawful Bases for Processing

We process personal information under one or more of the following lawful bases:

• Consent

• Performance of a contract

• Compliance with a legal obligation

• Legitimate interests pursued by FSHD UK Charity

• Protection of vital interests where applicable

Where we rely on consent, you may withdraw that consent at any time.

Marketing Communications

We will only send marketing communications where:

• You have given your consent; or

• We are otherwise permitted to do so under applicable law.

You can unsubscribe from our communications at any time by:

• Clicking the unsubscribe link in our emails; or

• Contacting us at Tek@fshduk.com

Donations and Payments

Where donations are made through our website, payment information is processed securely by trusted third-party payment providers.

FSHD UK Charity does not store or have access to your full payment card details.

Please refer to the privacy policies of the relevant payment providers for information about how they process your data.

Sharing Your Information

We will not sell, rent, or trade your personal information.

We may share information with:

• Service providers who help us operate our charity and website

• Payment processors

• Professional advisers

• Regulatory bodies where required by law

• Government authorities where legally required

All third parties are required to protect your information and only use it for authorised purposes.

Data Security

We take appropriate technical and organisational measures to protect your personal information from unauthorised access, loss, misuse, alteration, or disclosure.

While we strive to protect your information, no method of transmission over the internet can be guaranteed to be completely secure.

Data Retention

We will only retain personal information for as long as necessary:

• To fulfil the purposes for which it was collected

• To comply with legal, accounting, and regulatory requirements

• To resolve disputes and enforce agreements

When information is no longer required, it will be securely deleted or anonymised.

Your Rights

Under UK data protection law, you have the right to:

• Access your personal information

• Request correction of inaccurate information

• Request deletion of your information

• Restrict processing of your information

• Object to processing

• Request transfer of your information where applicable

• Withdraw consent where processing is based on consent

To exercise any of these rights, please contact us at Tek@fshduk.com.

Cookies

Our website may use cookies and similar technologies to improve user experience and analyse website performance.

You can control or disable cookies through your browser settings. However, some parts of the website may not function correctly if cookies are disabled.

For more information, please see our Cookie Policy.

Third-Party Websites

Our website may contain links to external websites. We are not responsible for the privacy practices or content of third-party websites.

We encourage users to read the privacy policies of any external websites they visit.

Children’s Privacy

We do not knowingly collect personal information from children under the age of 13 without appropriate parental or guardian consent.

If you believe a child has provided personal information to us without appropriate consent, please contact us and we will take appropriate action.

Complaints

If you are unhappy with how we handle your personal information, please contact us first so we can try to resolve your concerns.

You also have the right to lodge a complaint with the Information Commissioner’s Office (ICO):

Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF

Website: www.ico.org.uk
Telephone: 0303 123 1113

Changes to This Privacy Policy

We may update this Privacy Policy from time to time. Any changes will be posted on this page and will take effect immediately upon publication.

We encourage users to review this Privacy Policy periodically.